Kentucky Derby Festival miniMarathon and Marathon

Sat April 27, 2019 Louisville, KY US 40203
Charity Logo
Goal: $5,000 Number of Donations: 2 Total Donations: $105

Noah Stylin’ is now raising money for research into finding a cure for Erdheim-Chester Disease. In 2016 with the advancement of testing we were able to finally give Noah’s Disease a correct name….ERDHEIM-CHESTER DISEASE. Noah has been battling this disease now for over 10+years, we have been fortunate with the care we have received at UOFL by Dr. Bertolone that we have been able to keep going even when we weren’t sure what we were dealing with. 2017 has been a big year for Noah he graduated High School and turned 18 this summer. With research we have found a doctor in New York City as Sloan-Kettering that specializes in Erdheim-Chester Disease. Noah started a clinical trail in August with Dr. Eli Diamond, who I might add has great fashion since like Noah. He has had great results in the people that are using this trail drug. We are praying that Noah has the same results. Without research we wouldn’t be able to battle this disease and help people like Noah have a chance at Life. So this year help Noah Stylin’ raise money to fight Erdheim- Chester Disease.