Strides 4 CMV Twin Cities 5k

Sat June 22, 2024

Events

5k Run/Walk/Roll

$45 9:30AM CDT - 12:30PM CDT Registration Opens March 19, 2024 at 12:00am CDT

Description

This will be a 5k Run, Walk, or Roll with food/entertainment to follow. More details coming soon! Please continue to check this website for updates.

Location:  Coffman Memorial Union, 300 Washington Ave SE, Minneapolis, MN 55455

Schedule for Race Day:

  •   9:30: Check-in open
  • 10:00: Race begins
  • 11:00: Food/music begins
  • 12:30: Event concludes

Congenital CMV (cCMV) is the leading, non-genetic cause of childhood hearing loss, and a leading cause of childhood disabilities.  Less than 9% of women have heard of cCMV.  Proceeds from Strides 4 CMV benefit The National CMV Foundation (NCMVF), which is dedicated to promoting awareness, providing access to resources, and sharing prevention information to eliminate congenital CMV. The mission of NCMVF is to prevent pregnancy loss, childhood death, and disability due to congenital CMV. For more information, please visit www.nationalcmv.org.

EARLY REGISTRATION ENDS 6/4/23!! Register early for a lower price and guaranteed shirt size for race day!

ORDER A RACE SIGN IN HONOR OF A CHILD WITH CMV! Visit here for more information!

Interested in volunteering? We would love to have your help. Please us the link here to sign up!

We will be raffling some items at the event--bring cash to participate!

Registrations are non-refundable. 

Please scroll further down on this page for a fundraising toolkit!

SPONSOR OPPORTUNITIES AVAILABLE: contact amanda.devereaux@nationalcmv.org

Race Day Information

Parking and Transportation

By bus: check out the various routes that make this stop Stop Eastbound (Washington Ave & Coffman Union) Stop Westbound (Washington Ave & Coffman Union) 

Metro Transit (for more information go to: https://www.metrotransit.org/university-of-minnesota)

By rail: take the Green Line to the East Bank stop; walk west two blocks towards Coffman Memorial 

Parking: Limited metered/street parking is available in the surrounding area. Additionally, paid hourly parking is available at the following parking garages on campus: East River Road Garage, Washington Ave Parking Ramp, Oak Street Ramp, or Northrup Garage. Please allow plenty of time to find parking and plan to arrive at the staging area by 8:45 am. 

Handicapped Parking: It is suggested that those needing handicapped parking utilize the Washington Avenue Parking Ramp (501 SE Washington Ave, Minneapolis)

Note from East River Road Garage: follow signs to Coffman Union. Coffman Union does not open until 9 a.m., so you will need to follow the stairs around Coffman to the front of the building. Please note, for handicap-accessible parking, use the Washington Ave ramp (501 SE Washington Ave).

The nearest restrooms are in Coffman Union; Restrooms will be available starting at 9 a.m. when Coffman Union opens.

Start and Finish Line:  We will start and end at Coffman Front Plaza (just out the front doors of Coffman, facing Northrup and the light rail)

Weather: It’s June in Minnesota, so be prepared to run in any weather.  We plan to run rain or shine; prepare for warm or cold weather. If it is unsafe to run or if there are extreme conditions in the forecast, visit this event webpage.

Strollers and wheelchairs are welcome. Please start at the back of the pack for safety.

5k Route: (this is a 2 loop course that is accessible to strollers and wheelchair users) 

Click the icon below to download the attached PDF.

PDF

Sponsors

Thank you to Silver Sponsor Starkey Cares!

Race Contact Info

If you have any questions about this race, please contact the race director at

Virtual Participants

Check out our guide to participating virtually!

The Hemann Story

Kaylee was born in June 2020. She failed her newborn hearing screening tests, but we were told to not worry about it, that's common. She ended up having severe to profound hearing loss (which means she's deaf), a vision diagnosis of pigmentary retinopathy, and gross motor delays. 

We didn't get a cCMV diagnosis until she was 4 months old. We missed the window of opportunity to even consider antivirals. Our OB and pediatrician had never heard of cCMV. We got lucky with an amazing ENT that looked into it and connected us with Dr. Schleiss (who's a complete rockstar).

Kaylee is bilaterally implanted with Cochlear Implants, since hearing aids were unable to assist her. She is learning both ASL and English. Kaylee loves to sign, sing, and dance. She's our silly burst of sunshine that will make you smile every time life gets you down.

We are lucky on the spectrum of cCMV. We are grateful for the support and resources the CMV community has shared with us. Your donation to this leading non-genetic cause of pediatric hearing loss will help educate others and raise awareness of this virus.

The Wright Story

Jackson was diagnosed with CMV after a voluntary research swab at our hospital. We received a call two weeks later from our pediatrician that he was positive for CMV. We had a lot of unknowns and in a two day span upon being diagnosed we had a brain ultrasound, blood work, urine sample, vision retinal check, and audiologist ABR. Based on our results from those tests we decided to start Jackson on an antiviral treatment that has been known to reduce the chances of hearing loss. Jackson is our rockstar and a go with the flow kind of kid. Jackson loves to watch the world around him and laugh at his favorite person in the world (Dada). We love him so much and can't wait to see all he will do in life! We are passionate about getting the word out about CMV, and doing everything we can in this fight to help others. 

The Benson Story

Hi, we are Ryland's parents, and we want to share our journey with CMV. Our son Ryland was born in February of 2022 and was diagnosed with CMV at just 2 days old. Since then, we've been navigating the challenges that come with this virus. 

Ryland's hearing and gross motor skills have been affected by CMV. He has complete hearing loss in his left ear and mild to moderate hearing loss in his right ear. Despite the challenges, Ryland remains the happiest and most determined one year old we know. He loves books, listening to Ms. Rachel, and playing with all his stuffed animals. 

Currently, Ryland attends biweekly physical therapy appointments to stay on track with his gross motor development. He also attends Metro Deaf School to help him learn sign language. Ryland has a cochlear implant for his left ear, and he loves seeing his audiologist to manage it. He attends speech therapy monthly to improve his speech. We meet with his education team quarterly to track his development. 

Through all of this, Ryland has grown very fond of each person on his medical and education teams. They have become like family to us. Ryland has taught us to view the unknown as a new adventure instead of something to fear. 

We are grateful for the support and resources available to us through the CMV community. Your donation to CMV research and awareness will help families like ours in their journey with this virus. Thank you for your support! 

The Stanton Story:

Hayes was born July 2019 and I had a completely healthy pregnancy with him.  While in the hospital, about a day or two after his birth, a student from the U of MN stopped in and asked us if we wanted to participate in their study.   It would be a quick swab of Hayes’ cheek and they would be on their way.  This was about the 100th person that came in our room that day and I was so tired, I just said yes and assumed my son was 100% perfect. 

About 2 weeks later, we received a call from our pediatrician.  Hayes tested positive for congenital Cytomegalovirus (cCMV).  We had no clue what it was.  We had never heard of it.  My doctor never mentioned it or tested me for it and if I hadn’t said yes out of frustration to Hayes being tested for it in the hospital, I would not have known he had it.  Immediately we began questioning what it was and what this meant and soon we were connected with Dr. Schleiss (he is so amazing!) at the U of MN and had a long talk with him on the phone.  The most common side effect of cCMV is hearing loss (but there are many, many known severe side effects).  Since Hayes had passed his newborn hearing test, Dr. Schleiss just said we would need to bring him in for hearing tests every 3 months until he is 3 years old to ensure there has been no continued loss as this can be common with cCMV.

We are so blessed so far for Hayes' health and are hopeful he continues to do well and we want to do anything we can to help educate on this topic to prevent CMV. 

The Wiorek Story:

Hudson was born with Congenital CMV but was not diagnosed until he was 8 months old.  He has an intellectual disability, cerebral palsy, seizure disorder, feeding delay, and is non-verbal.  Hudson is the smiliest kid I have ever met! He finds so much joy in the people in his life.  He LOVES music, dancing, playing with his siblings, anything Winnie-the-Pooh, and reading books. His superpower is the ability to make everyone smile!

 

The Henrikson Story:

We started our journey with cCMV when our daughter Vivian was diagnosed at 2 days old.  Like many other families, we had never heard of cCMV and we were really intimidated by the unknown road ahead.  Vivian’s cCMV caused unilateral hearing loss, microcephaly, and cerebral palsy but luckily she was treated with antivirals right away to prevent further damage to her hearing.  She has had many doctor appointments, therapy, and surgeries but despite all this, Vivian’s story is one of courage, strength, and hope.  She is 5 years old and with her big beautiful smile and vivacious personality she is our daily inspiration and reminder of what hard work, determination, and a positive attitude will get you.  She loves school, singing, dancing, riding her scooter, and running with her friends and her brother.  This spirit has been contagious for our family, and one we are passionate about sharing with others.  We currently have a sponsored bill in front of the Minnesota legislature called the Vivian Act.  Once the bill is passed, it will bring much-needed CMV awareness to families and medical providers across the state.

The Devereaux Story:

Pippa was diagnosed with Congenital CMV at 21 weeks gestation. She received treatment in utero and after birth, and was born at the University of Minnesota in 2015. Pippa has an intellectual disability, developmental delay, seizure disorder, feeding delay, hearing loss, and is non-verbal. Pippa is an extremely happy, sweet girl. She enjoys numbers and letters, playing sports with her brother, bowling, going on walks, and watching videos. She is currently in 1st grade and is working hard at using her communication device. 

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