In-Person CureFest for Childhood Cancer 2022

Fri September 23 - Sun September 25, 2022 Washington, DC 20560 US Directions
Events

CureFest at Freedom Plaza (Fri. 9/23 & Sat. 9/24) and Washington Monument/Sylvan Theater (Sun. 9/25)

$0 5:00PM EDT - 2:00PM EDT Registration ends September 21, 2022 at 12:00pm EDT
Event Website

Additional Event information can be found at http://www.curefestusa.org.

Place
National Mall
Washington, DC US 20560
Description

CureFest 2022 will take place in a hybrid format again this September. There will be an in-person event in Washington, DC, as well as an interactive virtual format that will allow families from around the world to hold One Voice Walks and other activities in their own communities. 

CureFest for Childhood Cancer will be held in person in Washington, DC on September 21 - 25, 2022. 

Here are some of the features of in-person CureFest.

Note: This schedule includes official and unofficial CureFest events as well as additional events hosted by the childhood cancer community. All activities and events are subject to change or cancellation.

​Wednesday, September 21

​Golden Toast
6 p.m. at LiUNA's Private Rooftop Deck 
A cocktail reception honoring the Congressional Childhood Cancer Caucus Co-Chairs
(RSVP required)
Hosted by the Carson Leslie Foundation
 
Thursday, September 22

13th Annual Childhood Cancer Summit
Members of the Congressional Childhood Cancer Caucus gather with advocates, doctors, and survivors to raise awareness for the pediatric cancer community.
Hosted by the Congressional Childhood Cancer Caucus

Amplify Advocacy Workshop
Details to be announced
Hosted by various childhood cancer foundations

Friday, September 23

BrainStorm Summit Presentations
(Registration is required.)
Time: 7:15 a.m. Registration & Breakfast; 7:45 Program begins – Ends at 5:00 p.m.
Cost: $75/person (includes breakfast and lunch - age 3 and older)
Location: National Press Club - 529 14th St NW, Washington, DC 20045
Sponsored by: PBTF, Tough2gether Against DIPG, The H Life, Take Over Tumors, ChadTough Defeat DIPG, Morgan Adams Foundation, Luke’s Posse, CBTF, CureSearch, Gift From A Child

This Summit brings the pediatric brain tumor community together to share the latest information on: Alternative Therapies, Grief, Immunotherapy Options, Palliative/Hospice Care Best Practices, the Value of Sharing Patient Data and Recent Advances from Shared Data, Emotional Support Strategies for Parents, Fighters, Siblings and Survivors, Preclinical Work, a Review of the new My DIPG Navigator and the DIPG DMG National Brain Tumor Board, Advanced Therapies, and more. Questions: Lisa Ward at tough2gether@gmail.com

​Climb the Hill Youth Advocacy Day
(Registration required.)
Hosted by Kids V Cancer

CureFest Family Welcome Night
5 p.m. to 7 p.m. at Freedom Plaza
Hosted by CureFest

CAC2 Member Reception
6 p.m. to 8 p.m. Location to be announced.
Welcome Reception & Awareness Celebration

Hosted by the Coalition Against Childhood Cancer

Teen Track - Friday Late Night
Registration is required
7:30 p.m.- 10:30 p.m. (Travel provided by charter bus to location and back to JW Marriott)
Children’s National Research and Innovation Campus - 7144 13th Pl NW, Washington, DC 20012
Cost: FREE; However, registration is limited.
Age:  13 - 23 year olds who are fighters, survivors or siblings 

Sponsored by Rally Foundation for Childhood Cancer Research, American Cancer Society’s Gold Together for Childhood Cancer, Children’s National Foundation, Arms Wide Open Childhood Cancer Foundation and Tough2gether Against DIPG/DMG

Get together with other teens and young adults who are fighters, survivors or siblings of childhood cancer for a fun time to hang out at the ultra-modern Children's National Research and Innovation Campus (CNRIC). A charter bus will take you from the JW Marriott hotel to the CNRIC back. It will be a fun filled night at the lab with young scientists, followed by games planned by your peers, pizza, games, and social activities. Relax and socialize with others who share your cancer journey.  For teens 17 and younger please plan to have a parent meet the bus at the pick up and drop off location.
Questions: Lisa Ward at tough2gether@gmail.com

Saturday, September 24

BrainStorm Summit’s Tough2gether Against DIPG/DMG Breakfast
Registration is Required
Time: 7:30 a.m. Registration, 8:15 a.m. Coffee & Social time; 8:30 a.m. Breakfast begins – 11:30 a.m.
JW Marriott Washington DC - 1331 Pennsylvania Avenue, NW, Washington, DC 
Cost: $25/person (includes breakfast - age 3 and up)

Hosted by Tough2gether Against DIPG/DMG, 
Sponsored by: Chad Tough Defeat DIPG, Sonalasense, Luke’s Posse, Storm the Heavens, Arms Wide Open Childhood Cancer Foundation 

This breakfast promises to be a renewal of the shot in the arm the DIPG community experienced last fall. Now, in its second year, the breakfast is the pinnacle of togetherness for all DIPG families, researchers, physicians, cancer advocates and policy makers. We will intentionally provide time before and after the breakfast program to get to know others as we mingle amongst poster displays of our children and foundations who light our path. The program once again will highlight trials which are showing promise, new advances on the way, and celebrate the initiatives accomplished together in 2022. Just as important, we'll hear a fighter's perspective, legislative update, and share a roadmap of more opportunities to work towards together in 2023. Anyone is invited to join us and learn more about DIPG/DMG.
Questions: Lisa Ward at tough2gether@gmail.com

BrainStorm Summit’s Survivorship Breakfast 
Registration required
7:30 a.m. Registration; 8:15 a.m. Coffee Service & Social time; 8:30 a.m. Breakfast begins –  11:30 am
JW Marriott Washington DC - 1331 Pennsylvania Avenue, NW, Washington, DC Cost: $25/person (includes breakfast - age 3 and up)

Sponsored by: PBTF, CBTF, CureSearch, Gift From a Child, Morgan Adams Foundation, ChadTough Defeat DIPG, Tough2gether Against DIPG, The H Life, Take Over Tumors, Noah Halek Fund, Sonalasense,

This breakfast focuses on the real challenges faced by survivors of pediatric brain tumors.  Special attention is given to education, employment, advocacy, complications from treatment, recurrence, sexuality, health benefits & employment, and overcoming the lasting emotional impact of a cancer diagnosis.  Spend the morning with other cancer survivors, their families, providers, researchers and advocates as we delve into what happens now? Surviving after the immediate battle with pediatric brain cancer.  Anyone is invited to join us and learn more about dealing with the many issues survivors face.
Questions: Lisa Ward at tough2gether@gmail.com

Express, Create & Heal Workshops
9 a.m. - 11:00 a.m. at the JW Marriott Hotel
Fighters: Ages 3 - 12
Survivors: Ages 3 - 12
Siblings: Ages 3 - 12
Siblings: Ages 13+
Space limited for this free event.
Advance registration required.
Hosted by CureFest and A Moment of Magic

Teen Track: Do You Hear Us Now?
Registration required.
Time: 10:30 a.m. - 12:30 p.m.
JW Marriott Washington DC - 1331 Pennsylvania Avenue, NW, Washington, DC 
Cost: FREE

Hosts: Rally Foundation for Childhood Cancer Research, American Cancer Society’s Gold Together for Childhood Cancer, Arms Wide Open Childhood Cancer Foundation and Tough2gether Against DIPG/DMG

​Ever wonder how you are making it through this rough patch with cancer? Ever wonder if you are alone in your thoughts and experiences? Have you lost a brother or sister to cancer and want to make some kind of sense from your experience? Want to be heard and seen by those who understand? Want some new tools tried by peers going through a similar journey?  Join teens and young adults ages 13 - 23 for a fun filled morning planned by your peers. Topics will include the characteristics of being resilient, the common threads shared in doing life near this thing called cancer, and the ups and downs only those like you in the trenches know so well. Join fighters, survivors and siblings for an unscripted perspective led by your peers. Be seen. Let your voice be heard surrounded by those who understand.  
Questions: Lisa Ward at Tough2gether@gmail.com

Rally to the Capitol
2 p.m. on the National Mall
Hosted by the Rally Foundation

​CureFest Meet and Greet 
5 p.m. to 7 p.m. at Freedom Plaza
Hosted by CureFest

CureFest Night of Golden Lights
7 p.m. to 8:30 p.m. at Freedom Plaza
Hosted by CureFest

​CureFest Candlelight Vigil
8:30 to 9 p.m. at Freedom Plaza
Hosted by CureFest
Sunday, September 25

Hope, Healing and Heaven Worship Service
Hosted by Gift from a Child

CureFest Festival
11 a.m. at National Sylvan Theater near the Washington Monument: Performances, Speeches and Tributes
Hosted by CureFest

​Childhood Cancer Shoe Memorial Ceremony
12:30 p.m. on the Washington Monument Grounds
Hosted by CureFest and the 1Voice Foundation

CureFest Walk
12:45 p.m. on the Washington Monument Grounds
3/4 mile walk at your own pace
Hosted by CureFest

​Additional Components
 
One Voice Walks (Virtual)
Rather than just one large walk in Washington, DC, this year will feature hundreds of informal neighborhood One Voice walks around the country. Some walks may involve one person and others might involve many families. Customized banners with the name of your group, organization or community will be available for purchase at cost. 

Custom CureFest App (Virtual and In-Person)
Participants will be interconnected virtually through an interactive, custom app that will count the group’s steps for the day. Based on the number of participants, we will have a group goal for steps taken on September 24 and 25. There will also be unique ways for families to share updates and words of encouragement with other families.

CureFest LiveStream 
CureFest program with speakers and performers will be streamed on September 24 and 25 prior to the One Voice community walks.

CureFest Beads and Medals
Honor beads will be provided to in-person participants. Medals will be presented to all survivors, fighters, and siblings in attendance. 
Virtual participants will have the opportunity to purchase honor beads and medals for survivors, fighters, siblings, parents and advocates. 

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