YOU can make a difference in the lives of those affected by neurofibromatosis (NF)!
Will you contribute to my #NFStrong fundraiser as I partner with the Neurofibromatosis (NF) Network to raise funds to find treatments, a cure, and provide support for the 128,000 people living with NF in the US and their families?
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, ethnic groups, ages, and genders equally. NF is the most common disorder you have never heard of. Neurofibromatosis affects over 128,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.
NF has three genetically distinct forms: NF1, NF2 and Schwannomatosis. The effects of NF are unpredictable and have varying manifestations and degrees of severity. While there is no known cure for any form of NF yet, YOU can help me in the journey to find better treatments and a cure to end NF.
The NF Network's mission is to continue the search for treatments and a cure while supporting the NF community with education, awareness, and hope. Please consider helping me spread hope and awareness for the NF community as we continue our journey in finding a cure. Thank you!