$50
Raised of $5,000
Moyamoya Foundation is focused on moyamoya disease which is a rare blood vessel disorder in which the main arteries supplying the brain with blood (the internal carotid arteries and intracranial branches) narrow and tiny collateral vessels (“moyamoya vessels”) develop. Moyamoya patients are at increased risk for stroke among other neurological complications. Currently there is no cure for moyamoya disease and the typical intervention for moyamoya patients is revascularization surgery.
We are a fully volunteer organization consisting of many moyamoya patients, caregivers, and others with personal connections to moyamoya disease and our primary funding comes from fundraising events and donations through our website and social media.
Our mission is to promote awareness of moyamoya disease by working with healthcare professionals and patient advocates, to support and encourage research of moyamoya disease, and to provide assistance to families/patients undergoing moyamoya treatment for expenses not covered by insurance.
