As you know 22q is near and dear to my heart and this year I'm raising funds to support The 22q Family Foundation. This organization has a mission to raise awareness while connecting, supporting, and providing accurate information to families affected by this syndrome.
On June 3rd our team will be walking in honor of my daughter Darby Rose Wildt and everyone else with 22q.
Our daughter Darby Rose is a spunky, resilient 10 year old who was diagnosed with 22q at birth and has faced many challenges due to her diagnosis, including open heart surgery, multiple GI surgeries, palate surgeries and esophageal surgeries. She has defied the odds and is an absolute gift to all who are lucky enough to know her. While her journey with 22q is lifelong, with the support of an incredible family, community and @22familyfoundation her future is so promising.
The 22q Family foundation is dedicated to raising awareness for 22q11.2 Deletion Syndrome while connecting, supporting and offering accurate information to families affected by the diagnosis.
22q11.2 Deletion Syndrome is a chromosomal abnormality effecting about 1 in every 1,000 births, that can cause a wide range of health and developmental issues, including heart defects, breathing issues, GI issues, immune and endocrine systems, differences in the palate, slow growth, developmental delays or learning disabilities in some individuals. Children diagnosed with 22q may have many or only a few of the over 200 symptoms, with varying severity.
We ask that you join us in supporting this incredible organization while raising awareness for 22q. Every dollar we are able to raise will help individuals and families affected by by 22q find the resources they need to navigate an often overwhelming journey.
Thank you to everyone willing to help join us in supporting a cause so near to our hearts.
The Wildt Family
