Elliana was born with TEF/EA, a rare birth defect that causes the esophagus and airways to be deformed and incomplete. She had her initial repair less than 24 hours after birth at rainbows babies and children’s hospital and spent 61 days there recovering and fighting challenges. She was diagnosed with a syndrome called VACTERL, which includes the TEF/EA, as well as cardiac anomalies, vertebral anomalies and other GI issues. Our girl is now four and living her best life, she is the strongest person I have ever met and we love watching her grow and do all the things we never knew she would be able to do.
I started running in this race the year she was born and it’s been a passion of mine ever since. Every time I cross that finish line I’m reminded of not only how amazingly strong my daughter is but all the babies that had a NICU journey.
I’d love any one who is interested to join me on race day and run or walk but if that’s not your thing you can donate any amount to help us raise money project NICU to be able to help parents and families in the NICU, this is such a delicate and difficult journey.
BONUS! If we reach $250 Elliana will have a personal sign displayed along the path of the race😊