This amazing organization has done so much for me and my family. They have made me feel supported and less alone in battling rare diseases. I battle multiple rare diseases that affect every aspect of my life. Mine include Status Migrainous, Recurrent Esophageal Candidiasis, Trigeminal Autonomic Cephalalgias, and Functional Neurological Disorder. I am currently in college to study Biomedical Engineering to hopefully be able to help patients like me in the future get better treatments and help improve their quality of lives. I can not wait to participate in this virtual event again and look forward to raising awareness.
Join me in Fighting H.A.R.D. for Rare Disease Month 2024! My goal is to raise $228 for children who are battling rare diseases and chronic illnesses - every penny counts! Thank you for Fighting H.A.R.D. with me!
