Parker was diagnosed with Charge Syndrome in the NICU in 2008. He was inpatient in the NICU for 8 months and then was inpatient in the PICU for 2 1/2 months. He was discharged to rehab and came home when he was 13 months old.
We appreciate any donation, large or small. Your donation will directly impact families and professionals in the Charge community. We have been very fortunate to have received many different scholarships to attend the international charge conference. We've had opportunities after Parker was born to meet other families of individuals with Charge syndrome in New York, and beyond.
This is our annual fundraiser for the Charge Syndrome Foundation. Anyone who knows Parker sees how wonderful, grateful, determined, and amazing he is. Even though he has gone through so much when he was younger, countless procedures & surgeries- we NEVER take anything for granted. We celebrate every large and small moment, victory, and success.
Thank you so much for your donation, please share this link to everyone you know, and help us add to the mission of the Charge Syndrome Foundation to make the world a better place for individuals with Charge Syndrome.
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CHARGE syndrome is the leading genetic cause of deaf-blindness. Many individuals with CHARGE syndrome overcome insurmountable challenges to far surpass expectations.
All funds raised will help support individuals with CHARGE and their families through direct assistance, research, and outreach.
Will you help us support the CHARGE Syndrome Foundation by making a donation in honor of our efforts in the Walk and Roll for CHARGE?
Thank you for your support!
