Tough2gether Foundation’s mission is to fill gaps in the current pediatric brain tumor system. We know first hand how difficult it is to find the answers you want to questions such as: What is a DMG (diffused Midline Glioma)? Is Diffused Intrinsic Pontine Glioma (DIPG) and DMG different? Do young adults have DIPG? Do toddlers have DIPG? Should DIPG patients have a biopsy? What do DMG and DIPG tumor mutations mean? For DIPG is proton or photon radiation better? How do we access DIPG and DMG clinical trials? Where can we find financial help for DIPG treatment and living expenses? Can my child with DIPG or DMG qualify for medicaid? Social security disability, or a caretaker benefit?What is palliative care for DIPG? What is the difference between Hospice and Palliative Care for DIPG? Am I experiencing DIPG anticipatory grief? Where can I find emotional support for my child with DIPG, DMG sibling support, or emotional and financial support during grief from DIPG? How long does grief last in DIPG?
We know you need straight forward answers. Your walk with DMG will be the most difficult thing you have done. You don’t have to navigate DMG alone., Tough2gether Foundation is building resources to provide a path of the best practices in DIPG, with DIPG nurse navigators, DMG tumor board, and streamlined financial assistance for DMG through many collaborative partnerships. This allows Tough2gether Foundation to provide the information you need while funding DIPG and DMG research, providing clinical trial access for DIPG and DMG patients, improving use of patient data, and advocacy for childhood cancer and brain cancer patients. Central to our work is supporting the emotional and financial needs of families facing childhood cancer. We’ve been where you are, and we want to help.
