Family and Friends,
I have signed up to Run for William, a sweet 6 year old boy I know living with Duchenne Muscular Dystrophy. Duchenne is a rare and devastating genetic disorder that affects boys, resulting in muscle wasting and loss of mobility. Boys with Duchenne rarely live into their late twenties. We have been fortunate to get to know and become close with the Jackson family over the past couple years, and are continually inspired by William's spirit, and of their family's unwavering advocating and hustle to raise funds for his treatment, much of which ISN'T covered by insurance. One of my favorite stories of William is that he wore a "Big Brother," shirt to Molly's 1st birthday in the hopes that someone might confuse him for her older brother. He loves to play with her and is so sweet. He also drove Eleanor around in style on Halloween with his wheelchair. He is such an amazing kid!
A non-profit named Cure Rare Disease is working with his family on a unique clinical trial where each patient gets their own custom treatment using CRISPR gene editing technology. A team of researchers is working to formulate William’s individual treatment, and they are at a critical stage of research and development, but funding this research is very expensive.
Please visit wewillforwilliam.org to learn more about William and his incredible family. As we enter this season of gratitude, thank you for considering donating (anything helps!) to William so that we can cure this thing! Please visit my page and share with anyone you think might also be interested in helping William!
GRATEFULLY,
Callie
