Move to Cure STXBP1 Disorders 2025

Unlike most Move to Cure teams led by a single family, this team is made up of the STXBP1 Foundation’s Board of Directors and our Executive Director. Nine of us are moving—each with our own events—so we can lead from the front, model shared effort, and invite the whole community to rally with us.

Our team goal is $10,000. Every gift fuels the work families count on—research momentum, clinical trial readiness, resources, and community support.

Featured Moves:

• Executive Director Mark Quinlan's Bike Ride Across Missouri - 5 days, 350 miles from October 15-19 with daily updates from the Katy Trail!
• Heather Jones and Camden’s 49 birthday miles in 8 days at the end of October!
• Jackie Steinberg will be hosting the Central Maryland Move to Cure event, a gathering of STXBP1 families to walk, have some food, and let siblings get together and have fun on October 26! 
• Support Russ Novy's "Team Katie" here: https://runsignup.com/katiegn
• And other Board member activities throughout the campaign.  

We’re a leadership team moving beside families—Trailblazing Together toward safer care, smarter studies, and a faster path to treatments. Thank you for fueling hope with action.

Thank you in advance for your generous donation to the Team STXBP1 Foundation. Your donation and participation means the world to us and the entire STXBP1 community! Donations directly fund critical research for treatments, therapies, and a cure for STXBP1 disorders.