Lily was diagnosed with EHE in 2019 with metastases in her liver and lungs. After seven different chemo regimens, doing infusions during the pandemic, several long stints in the hospital, and all the ups and downs you could ever imagine, her cancer has been stable for four years.

Even though her cancer is stable, EHE still affects Lily every single day of her life. She still takes an oral chemo drug every day and has plenty of side effects because of it. Cancer is grueling, no matter what. But, Lily is still here, living life to the fullest of her ability. 

Please join Lily and and the EHE Foundation in raising awareness for EHE and funding research through the Fun Run! 

As the world’s leading patient advocacy and research organization for epithelioid hemangioendothelioma (EHE), The EHE Foundation is dedicated to funding groundbreaking research and fostering collaboration among patients, caregivers, clinicians, researchers, and industry professionals. Together, we are united by a shared vision: a future where EHE is easily diagnosed and effectively treated. 

Your generous support can make a profound difference. By contributing to the mission of The EHE Foundation, you join us in working toward a future filled with scientific breakthroughs and improved outcomes for all EHE patients. Together, we can bring hope and a brighter tomorrow to those affected by this ultra-rare disease.