Expert, Family-Centered Care for Children with HLH
Hemophagocytic lymphohistiocytosis (HLH) was once considered incurable, but that’s not the case anymore. Today, many promising therapies offer new hope to patients and families. At Cincinnati Children’s, our experts are at the forefront of HLH care and research. They provide rapid, accurate diagnoses and personalized therapies for children with HLH and are helping providers from other institutions care for their patients as well. Their research is leading to higher survival rates and more lasting cures.
Families who have faced this disease will tell you that battling HLH is a long and difficult journey. At the HLH Center of Excellence, we provide expert medical care, emotional support and other resources a family needs to meet the challenges ahead.
Why Choose Cincinnati Children’s
Expert Team
Cincinnati Children’s is the most experienced hospital in the nation in treating HLH. Our HLH team includes researchers and physicians who have studied the disease extensively. They care for between 10 and 20 children with HLH a year, a large number considering how rare HLH is.
HLH affects the immune system, causing uncontrolled inflammation that damages organs and can rapidly lead to death. Unfortunately, many physicians don’t have the experience to recognize the symptoms. As a result, HLH is often misdiagnosed or diagnosed too late. Most patients without access to effective treatments such as hematopoietic stem cell transplantation will die of their disease. A cure is possible, but an accurate and quick diagnosis is essential.
