In January 2025, after a growth was discovered on his abdomen, Nolan was diagnosed with a rare and aggressive form of cancer called Clear Cell Sarcoma (CCS). 

On March 4, following several medical appointments and scans (CT, MRI, PET), Nolan had a surgery to remove his tumor and is now considered cancer free.

Other than removal through surgery, there is no cure for CCS and it has a high recurrence rate.

Early detection and RESEARCH are imperative for CCS patients.

Sarcomas make up 1% of all cancers, and CCS makes up only 1% of those cancers. Funding for research is critical for any rare disease.

Thanks to the Race to Cure Sarcoma events, SFA has invested over $20 million in sarcoma research, funding over 200 grants in 12 countries leading to close to 200 total publications, adding to the sarcoma research discourse. This has led to $26 million+ in additional funding, 10+ clinical trials with 5 additional pending, and 2 patents. Your investment in the RTCS events, is an investment in saving lives.

Thank you in advance for your donation, sharing the fundraiser link, and/or advocacy. Your support will have an impact on Sarcoma patients like Nolan!

Love, The Butler Family