Evie was diagnosed with a rare, genetic epilepsy, at the age of 3 months old. She had very frequent, prolonged seizures with apnea. Unfortunately, there is very limited data on her epilepsy to date. I am happy to share that she is doing well and overall stable other than during illness. She is meeting milestones and we are very grateful. Please join us in in supporting her by helping Epilepsy Alliance, an organization that we will certainly utilize during our journey!
Epilepsy Alliance is an organization that offers many supports to not only those individuals with epilepsy but also the people that they are surrounded by; Supports groups, camps, education, resources, just to name a few.
Thank you for supporting the efforts of the Epilepsy Alliance Ohio by fundraising through our Emerald Miles 5K. The support gathered from this event allows us to provide many services to the community and impact the lives of thousands of people with epilepsy. Your support is greatly appreciated. If we can be of service to you as you help us out, please call our office at (513)721-2905 or email, pdeaton@epilepsy-ohio.org. Thanks!!