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The week leading up to Christmas in 2022, I found out I had a brain tumor. That tumor was removed In May of 2023. The following year was spent trying to get genetic testing done to find out if it was random or if I had a genetic condition. Earlier this year, my brother discovered a tumor in his jaw. He learned it's the same type of tumor I had in my brain - a schwann cell tumor. The genetic test results I had been waiting for came back in April, confirming Schwannomatosis, a branch of Neurofibromatosis. I'm asking you for help in raising funds to further the research and medicine for this rare condition.

YOU can make a difference in the lives of those affected by neurofibromatosis (NF)!

Will you contribute to my #NFStrong fundraiser as I partner with the Neurofibromatosis (NF) Network to raise funds to find treatments, a cure, and provide support for the 128,000 people living with NF in the US and their families?

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, ethnic groups, ages, and genders equally. NF is the most common disorder you have never heard of. Neurofibromatosis affects over 128,000 Americans.

Neurofibromatosis (NF) refers to three different genetic medical conditions, Neurofibromatosis type -1, Schwannomatosis, and NF 2 – related Schwannomatosis, involving the development of tumors that may a­ffect the brain, spinal cord, and the nerves. While there is no known cure for any form of NF yet, YOU can help me in the journey to find better treatments and a cure to end NF. 

The NF Network's mission is to continue the search for treatments and a cure while supporting the NF community with education, awareness, and hope. Please consider helping me spread hope and awareness for the NF community as we continue our journey in finding a cure. Thank you! 

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