Finding a Cure for Neurofibromatosis (NF)
We were deeply moved to learn that the NF Network is hosting a 5K in Memphis to support vital research for NF2. We’re even more touched that our niece is organizing a 5K team in memory of our beloved Aaron, who bravely fought this disorder with incredible strength and resilience.
We’d be so grateful if you could join us in supporting this cause. Whether it’s a small donation to Aaron’s team or signing up as a virtual runner for just $11.60, every bit helps bring us closer to a cure: https://runsignup.com/Race/Info/TN/Memphis/NFStrongTN?
Neurofibromatosis is a rare condition that causes tumors to grow on the brain, spinal cord, and nerves throughout the body. While many of these tumors are non-cancerous, they can still cause severe pain, impair hearing, affect vision, and impact mobility.
Our son, Aaron, was a true warrior. Though he was born with NF2, we didn’t receive the diagnosis until he was a young teen. Over the years, we watched this disorder take its toll. Aaron endured 32 major surgeries and rounds of chemotherapy, each one aimed at removing tumors that threatened his life. These surgeries and chemo helped save his life many times until the age 34. Despite all he faced, Aaron showed incredible courage.
Research is making progress, and every day we are much closer to a cure, but we still have a long way to go. By supporting the NF Network and spreading awareness, we can help make a difference. Whether you donate, run virtually, or share this post, you’re honoring Aaron’s memory and supporting those currently fighting this battle.
Let’s come together to run for Aaron, for those on this journey now, and for the many who will face it in the future. Thank you for your support.
