Ansell and Lou would love your support as they run/scooter the GLOW mile!! They will work hard to persevere and endure just as they do everyday, living with galactosemia.
Its been a really hard year, in more ways than one, for our family. The most public way happened the day before thanksgiving when the FDA denied approval of the medicine Ansell has been taking for several years that significantly improves her cognition. We are working hard to make life was bright as it can be for our girls, and for all those who live with galactosemia, and this is one way you can come alongside us!
As always, we really really appreciate your love and support!
