We would love for anyone to join us for the annual 5k Run, Walk & Roll for Malan syndrome. You can run or walk virtually from anywhere, or even just donate to the research for Malan syndrome. This is a cause very near and dear to our hearts. As many of you know, our peanut has been diagnosed with Malan. We want to do this walk to raise money for further research for Oliver and all the wonderful kids and adults that share this journey with him. Malan syndrome awareness day has officially been recognized in the state of Georgia as of last year. August 19th is Malan Syndrome awareness day. The virtual 5k will take place from Monday, August 19th- Sunday, September 9th. Please join our team “Peanut’s parade” and show your support for this rare syndrome. Last year the foundation raised over $80,000. This year we hope to raise $100,000!
if you have time, I encourage you all to read just a bit more about Malan, you can find lots of info at https://www.malansyndrome.org
