Welcome to our page! We are Joanne and Ashlee - a mother daughter team joining other families to raise vital funds and awareness for Malan Syndrome.

This cause is our everyday reality. We share an unbreakable bond and are participating to support families like us  world wide who are born with this rare genetic condition.

Every dollar goes directly to the Malan Syndrome Foundation to fund clinical research and family support systems.

Thank you for helping us grow! 

#Growhope