Move to Cure STXBP1 Disorders 2025

Trailblazing Together to Cure STXBP1 Disorders
Be part of a global movement as the entire STXBP1 Community comes together—near and far—to Trailblaze Together for STXBP1 Disorders! Families and friends are encouraged to walk, run, hike, or bike right in their own neighborhoods and communities.

We have a bold goal this year: raise $100,000 to fund critical research. And we know our incredible, trailblazing community is ready to rise to the challenge.

What?

Grab your family and friends and let’s get MOVING to Trailblaze Together for STXBP1 Disorders! The STXBP1 Foundation invites you to join us in raising awareness and funds in honor of our loved ones living with an STXBP1 disorder.

Create a team or join a team and Get Moving across the globe to CURE STXBP1 Disorders! Each team will have their own event page—whether in-person or virtual. Once registered, check your team’s page for specific details about your Trailblazing Together: Move to Cure STXBP1 Disorders event.

Why?

STXBP1 Disorder is a rare developmental and epilepsy disorder caused by mutations in the STXBP1 gene, located on chromosome 9. These changes impact communication in the brain, leading to symptoms such as epilepsy, global developmental delay, cognitive impairment, autism, and movement disorders.

Your participation and donations help fund critical research to accelerate the development of therapies, treatments—and one day, a cure.

Who?

The STXBP1 Foundation, a 501(c)3 dedicated to raising awareness and finding a cure for STXBP1-Related Disorder. We work with families, physicians, scientists, and pharmaceutical innovators. The STXBP1 Foundation was created by a group of dedicated parents. Our nonprofit is focused on advocacy, driving research, and providing our families and their physicians with information and resources. 

When?

The Trailblazing Together: Move to Cure STXBP1 Disorders global event launches September 1 (STXBP1 Awareness Month) and continues through December 2 (Giving Tuesday).

If your team isn’t hosting an in-person event, pick a day, put on your STX gear, and get moving for a cure! Don’t forget to take photos and tag us:

Facebook: Stxbp1 Disorders
Instagram: @stxbp1_foundation
Use hashtag: #Move2CureSTXBP125
Check your team page for details on in-person or virtual events.

How to Join a Team

1. Visit the STXBP1 Move to Cure Event page and click the maroon “Register – Join a Team” button.
2. If you’re new to Run Sign Up, create an account and add a registrant. If you already have a profile, select it and continue.
3. Agree to the waiver by typing your name.
4. Choose whether to join the mailing list.
5. Once registered, you can create or join a team!
After joining, visit your team’s page under the “Donations” tab to find out whether your event is in-person or virtual—and start planning your trailblazing journey!

New Shirts for 2025!

We’ve refreshed the shirt design with a bold new look! Don’t miss out on your team’s custom shirt—shipped directly to your home.

Starting a team? Create a team shirt (link coming soon) and add it to your team page.
Joining a team? Look for your team’s shirt link and rep your crew with pride!

Ready to Trailblaze Together?

REGISTER and/or DONATE TODAY and help us reach our goal. Together, we’re not just moving—we’re Trailblazing Toward a Cure.