The Salla Treatment and Research Foundation ("A STAR for Ben, Inc.") is a 501 (c) 3 tax-exempt charitable organization dedicated to supporting and advancing Salla disease treatments, research, education, awareness, and family networks.
The Foundation supports collaborative scientific research in order to accelerate the prospects for effective medical treatments for those affected with Salla.
The Salla Treatment and Research Foundation is driven by an unwavering belief that no disease is too rare to fight, and that with sufficient support, hope, and faith, a small team of committed researchers, families, supporters, and advocates can create meaningful solutions for those impacted by this disease.