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12th Annual Ugly Holiday Sweater Run

Sat December 21, 2024 Tualatin, OR 97062 US Directions

12th Annual Ugly Holiday Sweater Run

Donation Goal: $5,000

The Ladybug CDH Foundation was inspired by Finley.

At their 20 week ultrasound appointment on March 31st 2010 (ironically CDH Awareness Day), Liz and her husband Jon were thrilled to get the news that they were having a second girl. That news was quickly overshadowed by the fact that the baby had a pretty serious complication. The baby had a left-sided congenital diaphragmatic hernia (this happens in one in about every 2,500 births) which means the diaphragm didn’t close entirely when it was supposed to and some of the lower organs (in this case; stomach, intestines, and spleen) were growing where they shouldn’t be. As a result, they were told, that the lungs wouldn’t grow to normal size and she was at risk for a laundry list of complications that ended with the statement that she had about a 40-50% chance of survival. 

Finley was in the fortunate 50% that survive. It took 19 days for her to stabilize enough for her to have her repair surgery and after 30 days more in the NICU, she was able to come home. Liz started the Foundation to be able to offer the same support that the Dooley family received during their journey. The CDH families that came along side and supported and shared their experiences is what made all the difference. Their friends and community that walked along side them. They felt that everyone should have that same support when experiencing this kind of earth shattering diagnosis. 

Because this defect is rare and not heard of by most, it does not have the funding that other more widely known birth defects attract. All money raised by the Ladybug CDH Foundation goes towards research and helping families with a child with CDH in the hospital. Hospital expenses average from $500,000 - $1M+, so some families can be bankrupted by a CDH diagnosis. Many families travel thousands of miles to deliver at a hospital equipped to care for a CDH baby. This means incurring additional expenses of housing, gas, and food daily. Then, imagine those expenses and also having to cover a funeral? Or many of these fortunate children, who do come home, come home needing at-home nursing, oxygen support, feeding tubes, and numerous medicines. We help those families. Your donation helps these families.

Last year, the Ladybug CDH Foundation used funds to give gift cards for food and gas, help for for funeral expenses, gave care packages, and raised $40,000+ that will go towards research hopefully to increase neonatal survival and quality of life.

Every dollar counts. Please give today. 

$1,577

Raised of $5,000

$0
$5,000

Top Donors

$1,577 Raised By 71 Donors

$100 on behalf of Steve Drew
$100 on behalf of Susannah Fleming
$75 on behalf of Emily Addiego
$50 on behalf of Dana St John
$50 on behalf of Diana Potts
$50 from Anonymous
$50 on behalf of Katherine Dougall
$50 on behalf of Samantha Harmon
$50 on behalf of Sarah Moser
$50 on behalf of Shana Larsen
$40 on behalf of Veronica Forbish
$30 on behalf of Jenny Lamont
$25 from Anonymous
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Heather Huber
$25 on behalf of Irene Rodegerdts
$25 on behalf of Juan Zamora
$25 on behalf of Larry Browning
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Rochelle Monson
$25 on behalf of Stephanie Backman
$25 on behalf of Takayuki Yamamoto
$25 on behalf of Trisa Kays
$25 on behalf of Wanda Johnston
$15 on behalf of Adam Marker
$15 on behalf of Ashley Hill
$15 from Anonymous
$15 from Anonymous
$15 from Anonymous
$15 on behalf of Faith Buchanan
$15 on behalf of Jessica Root
$15 on behalf of JOSHUA DALGLISH
$15 on behalf of Julie Donovan
$15 on behalf of Julie Donovan
$15 on behalf of Kelsey Akerson
$15 on behalf of Liza Wilson
$15 on behalf of MaryBeth Davis
$15 on behalf of Matt & Jenn Dawson
$15 on behalf of Ms.Claus for a Cause
$15 from Anonymous
$15 on behalf of Randall Corey
$15 on behalf of Sally Gray
$15 from Anonymous
$10 on behalf of Amy Williams
$10 from Anonymous
$10 from Anonymous
$10 from Anonymous
$10 on behalf of Fabiola Lopez
$10 from Anonymous
$10 on behalf of Hope Stansell
$10 on behalf of Houston Sherrod
$10 from Anonymous
$10 on behalf of Jeffrey Garrett
$10 from Anonymous
$10 on behalf of Kari Ruconich
$10 from Anonymous
$10 from Anonymous
$10 from Anonymous
$10 on behalf of Michael Fleming
$10 from Anonymous
$10 on behalf of Renjini Kumari Amma Gopinath
$10 on behalf of Sergey Mezentsev
$10 on behalf of SHANNON WILSON
$10 from Anonymous
$10 on behalf of Valerie Pratt
$10 on behalf of Vicki Korpi
$10 on behalf of Zoë Snedeker-Short
$5 on behalf of Dale DesHarnais
$2 on behalf of Dale DesHarnais

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