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Sioux Falls Half Marathon: Skedaddle & The Bryan Boys for Hope: Zippy Mile

Sat May 17 - Sun May 18, 2025 Sioux Falls, SD 57104 US Directions

Sioux Falls Half Marathon: Skedaddle & The Bryan Boys for Hope: Zippy Mile

Donation Goal: $5,000

Bryan Boys Story
Sawyer (10) & Wesley (7) Bryan, of Tea, were recently diagnosed with Duchenne Muscular Dystrophy (DMD), a rare progressive muscle loss disease.  “Bryan Boys for Hope” is the title created by the Bryan family to raise awareness, education and drive funding in support of a customized therapeutic for both boys.  The Bryan’s have aligned themselves with a Boston based non-profit called Cure Rare Disease (CRD).

DMD is the most common fatal genetic disorder diagnosed in childhood affecting 1 in every 3,500 male births.  There is currently no cure for Duchenne Muscular Dystrophy.  The dystrophin gene is the largest known human gene and it provides instructions for making the protein dystrophin, which holds muscles together and helps maintain function.  This gene fits together like a long string of 79 puzzle pieces.  Any one duplication, deletion or error in the sequence can stop the protein from being produced.  Boys with Duchenne lose muscle throughout their life and typically lose the ability to walk between ages 10-12 and normally do not survive their mid-twenties.  The diagnosis of DMD runs on a spectrum with some seeing symptoms and hardships very early on and others showing struggles later in time. 

The Bryan’s current routine involves daily steroids, supplements, muscles stretches, strict diets, leg splints, bi-weekly physical therapy and a whole lot of Love and Prayer.  A muscle biopsy was recently completed for Sawyer at the University of Massachusetts and a prototype capable or repairing the gene discrepancy is underway at SickKids Hospital in Toronto. 

You can follow the Bryan family by searching ”Bryan Boys for Hope” on Facebook and Instagram and more can be learned about CRD by visiting cureraredisease.org.    

$2,121

Raised of $5,000

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$5,000

Top Donors

$2,121 Raised By 74 Donors

$200 on behalf of Linda Bryan
$131 on behalf of Everyone
$131 on behalf of Kevin Chambless
$131 on behalf of Paul Bjordahl
$131 on behalf of The memory of Jenna Anderson
$100 on behalf of Kristen Loehrer
$75 from Anonymous
$61 on behalf of John Olson
$50 on behalf of Traci Baker
$26 on behalf of David Krause
$25 from Anonymous
$25 on behalf of Bobby Beach-Pattison
$25 from Anonymous
$25 on behalf of Curt Reemtsma
$25 on behalf of Daniel Christensen
$25 from Anonymous
$25 from Anonymous
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Karen Lee
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Michael Noltner
$25 from Anonymous
$25 from Anonymous
$25 on behalf of ReigniteLife
$25 from Anonymous
$25 from Anonymous
$25 from Anonymous
$25 on behalf of Sarah McCoy
$25 on behalf of Scott Pearson
$25 from Anonymous
$25 on behalf of Yuliya Free
$20 on behalf of Lindsey Kuper
$15 on behalf of Amy Schumacher
$15 on behalf of Anne Hooyer
$15 from Anonymous
$15 on behalf of Faith Larson
$15 on behalf of Garrison Mulder
$15 on behalf of Hailey Sees
$15 from Anonymous
$15 on behalf of Hannah Maggard
$15 on behalf of Holly Kunkel
$15 on behalf of James Berreth
$15 on behalf of Jamie Williams
$15 from Anonymous
$15 from Anonymous
$15 on behalf of Joshua Liester
$15 from Anonymous
$15 from Anonymous
$15 on behalf of Karri Olmanson
$15 on behalf of Logan Siebrecht
$15 from Anonymous
$15 on behalf of Nicole Zobel
$15 from Anonymous
$15 on behalf of Steven J Tatman
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$15 on behalf of Terkildsens
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$10 from Anonymous
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$10 on behalf of Sarah Ashley
$5 on behalf of Adam Fendrich
$5 on behalf of Anna Carruth
$5 from Anonymous
$5 on behalf of Grace Jacobsen
$5 on behalf of Norton Laurent
$5 on behalf of Presley Eggers
$5 from Anonymous
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