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Charge! Teddy's 5K

Sat October 28, 2023 Dallas, TX 75214 US Directions

Charge! Teddy's 5K

Donation Goal: $20,000

Hello,

My name is Jill Taylor, and I am the President and co-Founder of Teddy’s Rough Riders, and proud mom to Teddy Taylor. Teddy's Rough Riders is a recently formed non-profit that supports research into a cure for a very rare genetic condition called STXBP1 Disorder. 

Teddy was diagnosed with this disorder after genetic testing was done to determine why he was having seizures at birth. His doctors told us that he would never learn to speak, he may never learn to walk, and that there was no cure or treatment other than medication to control his seizures. He will likely need full-
time care his entire life, and there is not enough known about the disorder to tell us his life expectancy. To say we felt devastated and hopeless does not begin to describe the depth of emotion his father and I felt at that moment.

It has been over a year since Teddy’s diagnosis, and we are now part of an incredible parent-led organization that funds research into a gene therapy cure for this disorder. In the past several months, an institute at the Children’s Hospital of Philadelphia has been established to develop therapies that they hope to have ready for clinical trials within the next three years! This is such a rare disorder (only 1,000 known cases in the US) that there is no incentive for pharmaceutical companies to develop treatments - if there is going to be a cure, it will happen because of fundraising by the friends, family and community members of children with STXBP1 Disorder.

Our non-profit will host a 5K race around White Rock Lake on October 28th. All of our proceeds will go to the STXBP1 Foundation to help fund the ongoing research into a cure. We would be so honored if you would join us to be a part of this incredible moment in history - where we put an end to STXBP1 and other genetic disorders.

Come join the charge!

Jill Taylor

$10,185

Raised of $20,000

$0
$20,000

Top Donors

$10,185 Raised By 56 Donors

$2,000 from Anonymous
$1,000 on behalf of Richard Buchter
$1,000 from Anonymous
$1,000 from Anonymous
$500 from Anonymous
$500 on behalf of Rick Matus
$250 on behalf of Alison Dolce
$250 on behalf of Clarissa Howley
$250 on behalf of Courtney Carter
$250 on behalf of The Gaunties 🌈🤠
$200 on behalf of Curtis and Sandra Webb
$200 on behalf of Lois Buchter
$200 on behalf of Susan Hutchinson
$150 from Anonymous
$150 on behalf of Lois Buchter
$150 on behalf of Michael Schuit
$100 on behalf of Anne Langston
$100 on behalf of Charles Miller
$100 on behalf of Chloe Buchter
$100 on behalf of Elise Jakabhazy
$100 on behalf of Ellen Chang Vaughan
$100 on behalf of Kelley and Pete Michalski
$100 on behalf of Kelley Michalski
$100 on behalf of Lea Zeqiri
$100 from Anonymous
$100 on behalf of Ray Ledbetter
$100 on behalf of Rebecca Taylor
$100 on behalf of Sandra and Ben Hubenak
$60 from Anonymous
$50 on behalf of Alex Roland
$50 from Anonymous
$50 on behalf of Christine Tomlinson
$50 on behalf of Christy DeBruin
$50 on behalf of Davin Haley
$50 on behalf of Edwin Quinones
$50 from Anonymous
$50 on behalf of Lee Sinclair
$50 on behalf of Patricia Welton
$50 on behalf of Renea Ryland
$50 on behalf of Sylvie Goudeau
$50 on behalf of The Millertons
$30 from Anonymous
$25 from Anonymous
$25 on behalf of Jacob and Abbey Jennings
$25 from Anonymous
$25 on behalf of Russell Murdock
$20 on behalf of Amelia and Ansley Loving
$20 on behalf of Beth Ward
$20 from Anonymous
$20 on behalf of Riley & Allie Michalski
$20 from Anonymous
$10 on behalf of Grace Tomlinson
$10 from Anonymous
$10 from Anonymous
$10 from Anonymous
$5 from Anonymous

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Donation Attribution

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