Dash4DESSH 2024 (Draft)

Together we can make a difference in the lives of those affected by DeSanto-Shinawi Syndrome. On August 31 - September 2, 2024 join others across the globe to raise critical funding for resources, therapies and working towards a cure. The dash is athletic-optional with a focus on fundraising and fun. It can be run, walked or whatever mode of transport is preferred; you can set a goal of 1 mile, 3.1 miles (5k) or simply stroll around the neighborhood, you decide! You can meet others at a park, your street corner, the beach, or anywhere. You can go on your own, or build a team. Start whenever it is convenient for you during this two day period. We encourage everyone to show your support by wearing our signature #DASH4DESSH 2024 t-shirt that is available at the DESSH Shop - https://curedessh.myspreadshop.com/ - or download a free paper bib to pin on your own shirt after registering and take photos. 100% of the registration fees and donations are set aside for DESSH programs, education, and research. Let's come together no matter where we are!