Hello Everyone!
I am raising money for William, a sweet 6 year old boy I know living with Duchenne Muscular Dystrophy.
Duchenne is a rare and devastating genetic disorder that affects boys, resulting in muscle wasting and loss of mobility. Boys with Duchenne rarely live into their late twenties. Heartbreaking.
I’m proud to be part of his community, along side his family, who continues to hustle to raise funds for his treatment, much of which isn't covered by insurance.
A non-profit named Cure Rare Disease is working with his family on a unique clinical trial where each patient gets their own custom treatment using CRISPR gene editing technology. A team of researchers is working to formulate William’s individual treatment, and they are at a critical stage of research and development, but funding this research is very expensive.
To learn more about William you can visit wewillforwilliam.org.
Can you help me raise money for his treatment this year? A donation of any amount is greatly appreciated. Thank you for helping William!
Sincerely,
Adam Johnson
