Hidradenitis Suppurativa has changed my life but not for the better. I have suffered with this disease for almost 10 years. A lot of those years were in silence because this disease makes you feel very embarrassed and makes you not want to tell people. I was not diagnosed with HS until this past year. I have such a great support system that I am forever grateful for! Also knowing I’m not the only one going through the same pain, feelings and thoughts makes me feel like I’m not alone. I hope someday there will be some type of medicine that can help keep this condition under control without having to get surgery done. I am in constant pain all the time but this condition is something you’d rather suffer in silence rather tell people about. My hope is change that. I have been starting to be more open about this condition to people even when it makes me feel uncomfortable. I will have HS for the rest of my life but so will all my advocates!
