Running is fun. Running Disney makes running more fun. The most fun is when a worthwhile cause is added. This September, I will complete my third RunDisney event and my longest one yet at 13.1 miles and complete the Coast to Coast Challenge. But you know what isn't complete? A cure for rare diseases such as MED13L. MED13L syndrome is a complex developmental disorder with a spectrum of symptoms including developmental delays, intellectual disability, and distinct facial features. It often involves challenges with muscle tone, motor skills, speech, social interaction, autism, behavior concerns, seizures, or congenital heart defects.
What to help? Let's make a deal. I will do all of the running, all 13.1 miles. I will take the unflattering photos of water and Powerade poured all over my face while I huff and puff across the finish line. All you have to do is donate to this super worthwhile cause. Unable to donate? No problem! Just send me all the good vibes as I try to help bring awareness to one of many rare diseases.
Thanks for coming to my Ted Talk! Look for me on the pavement!
