Hi friends! 2024 was the year I accepted the reality that I am a Disney Adult. 2024 was also the year that saw me in urgent care and more doctor's visits than the past three years combined, trying to figure out what was happening with my body, only to ultimately find out it's the manifestation of a diagnosis I received years ago. I was lucky in that I have answers, but I know others aren't so fortunate. As I'm gearing up for the Disney Halloween run in 2025, I came across the opportunity to partner with Cure Rare Disease, a nonprofit whose donations go directly to the research and development of life-saving therapies for Rare & Ultra-Rare Neuromuscular Diseases. Health insurance and health care are hot topics right now, but 97% of this nonprofit's revenue goes directly to research and development, and finding answers for families who've been told there are none. It's just a drop in the bucket, but I feel really proud to be supporting an organization that focuses on developing therapeutics to halt or reverse the progression of genetic neuromuscular and neurodegenerative diseases. If you can, I would love it if you can join me! Happy holidays!!
P.S. to be clear, this fundraising is independent of the registration fee I gave to The Mouse.
P.P.S. my family is also running, and also fundraising, so if you want to donate to their campaigns in addition/instead, here's their links:
Ron Lindsay
Victoria Lindsay
Monica Lindsay
