Galactosemia is an ultra-rare disorder caused by a genetic mutation that affects how galactose is broken down in the body.
It currently effects approximately 3,500 individuals in the United States.
This is a life-long condition that currently has no treatment. Individuals with galactosemia use a restricted diet in an effort to reduce the effects of the condition.
Galactosemia Foundation is the primary resource for families and individuals with galactosemia. The Foundation maintains updated diet guidelines, information for families of newly diagnosed infants, and perhaps most importantly, provides a vital point of connection for affected individuals through conferences, virtual and in-person meet-ups, advocacy guidance, and more.
Galactosemia Foundation advocates for people with Galactosemia and their families, connects families, and supports networking efforts between clinicians and researchers.
Your donation will benefit the efforts and important work of Galactosemia Foundation.
Thank you for your donation.