As you all know, I am passionate about the Rothmund-Thomson Syndrome Foundation. Why else would I be crazy enough to sign up to run/walk a 5K? My daughter, Victoria, was born with RTS and my passion comes from her. She loved her extended RTS family and did everything she could to connect, educate and support them during her 25 years with us. Since her passing in 2009, we have joined with other families to establish the RTS Foundation in her memory.
Please dust the cobwebs off of your running/walking shoes and join in participating in the Rothmund-Thomson Syndrome Foundation Virtual 5k, 10k or Half Marathon on September 12, 2021 the choice is yours!! THIS IS A DONATION ONLY EVENT!
By joining us and collecting donation you will help us continue to promote RTS awareness to the general public, healthcare professionals, and individuals affected with RTS and their family members. Your donations and participation will also enable us to sponsor annual conferences and regional seminars, keep the patient registry going and expand research activities worldwide.
Funding for extremely rare genetic conditions is incredibly hard to come by, organizations of all sizes have had their funding impacted by COVID-19, the harsh reality of the situation is that the larger organizations are seeking out the smaller funding this year more than they have in years past making it harder and harder for our leading researcher to secure the funding needed to keep her research alive. Please consider sharing and purchasing!
Click the link below to purchase the official RTS Virtual 5k, 10k, half marathon merch! May different styles and sizes to pick from!
https://www.bonfire.com/store/rts-foundation/
