Hometown: Columbus, OH
Age on Race Day: 9
Diagnosis: SC Sickle Cell, Cystic Fibrosis Pancreatic Insufficiency
During Kaden’s newborn screening, it was revealed that he had sickle cell disease, a blood disorder that leads to anemia and blocked blood vessels. Kaden was diagnosed with type SC, often considered less severe than type SS, but his experience proved otherwise.
From ages 1 to 3, hospital stays were constant. Kaden was admitted for weekly blood transfusions, which quickly became part of life. Through it all, Kaden’s care team at Nationwide Children’s Hospital worked tirelessly to keep him comfortable and safe.
At age 5, Kaden started Hydroxyurea, a common treatment for sickle cell, which helped reduce his hospital stays. Around the same time, Kaden was assumed to have asthma but genetic testing revealed a CFTR gene mutation, a change in the gene that provides instructions for the CFTR protein, which can lead to various health issues, most notably cystic fibrosis. Kaden was seen by a specialist after a flare up that included coughing, wheezing, and shortness of breath, and he was officially diagnosed with cystic fibrosis. Despite these obstacles, Kaden’s spirit never wavered.
“He is full of life and the party in any and every room,” shares Kaden’s mom, Terriana.
Today, Kaden faces multiple medical challenges, but his energy is inspiring to everyone around him.
“I thank God for Kaden’s team of doctors at Nationwide Children’s,” Terriana says. “Without them I wouldn’t have the knowledge to help keep my son healthy at home and the help to keep him comfortable when admitted to the hospital.”
