Welcome to the Move for Paul Fundraising Page!
For those who are unaware, Paul Jr. was diagnosed with this rare genetic mutation in 2019 at the age of 16. He lives with daily seizures, mobility issues, feeding issues, and other health problems due to his diagnosis. There is currently no cure. Despite these struggles, Paul has touched so many lives and continues to teach us acceptance and gratitude.
For the month of September, we are raising awareness and money to support Paul and the entire STXBP1 community. Donations directly fund critical research for treatments, therapies, and a cure for STXBP1 disorders.
Want to look awesome while raising awareness? Link to team shirts here! www.bonfire.com/move-for-paul-stxbp1/
