My son Tyden has over 20 tumors on his body so far. He is only 9 years old. He has a optical glioma, scoliosis, and ADHD. He asked suffers from migraines. Despite everything he is a very happy child. He is a jokester and a very loving little boy. Your donation to our cause is greatly appreciated.
Will you contribute to my #GoFundNF fundraiser as I partner with the Neurofibromatosis (NF) Network to raise funds to find treatments, a cure, and provide support for the 128,000 people living with NF in the US and their families?
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to 3,000 births). The neurofibromatoses affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.
NF has three genetically distinct forms: NF-1, NF-2 and Schwannomatosis. They are caused by different genes and chromosomes. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for any form of NF, although the genes for both NF-1 and NF-2 have been identified
NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with Neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.
