Please join me to raise money for Cur
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post to raise money for Cure Rare Disease by running 1/2 marathon at walt disney world. CUre Rare Diseases mission - Our mission is to enable and finance the development of life-saving genetic medicines for rare and ultra-rare patient populations previously deemed too rare to treat. To realize this, our unique ecosystem facilitates collaboration between world-renowned researchers and clinicians, policy experts and our generous donors. Together, we are fundamentally changing the rare and ultra-rare disease experience and burden for millions of people around the world with our discoveries and methods—while bringing hope to patients waiting for a cure.
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🌟 Join Me in Making a Difference! 🌟
Hello Friends and Family,
This year, I've committed to running a half marathon at Walt Disney World—a magical challenge for a mighty cause! I'm running to support Cure Rare Disease (CRD), a groundbreaking nonprofit organization dedicated to developing genetic medicines for rare and ultra-rare diseases. These are conditions often overlooked by large pharmaceutical companies because they affect such a small number of people.
🏃♂️ Why I'm Running
CRD’s mission is to create life-saving treatments for patients who, until now, had little hope. Their innovative approach brings together top researchers, clinicians, and policy experts to develop custom therapies. This isn't just about making strides in medicine; it's about changing lives and giving hope to millions globally.
🎢 Why at Walt Disney World?
What better place to run for hope and dreams than at the most magical place on Earth! Every mile I conquer helps bring us closer to a cure—transforming the world of rare diseases from the realms of fantasy into reality.
🙏 How You Can Help
I need your support to reach my fundraising goal. Every donation, no matter the size, makes a significant impact. Your contribution goes directly to CRD, enabling them to continue their vital work and innovate further. Together, we can help lighten the burden on affected families and bring much-needed therapies to fruition.
Please consider making a donation through my fundraising page. Whether you can give $10 or $100, every bit will help bring us closer to a world without rare diseases.
Thank you so much for your support and generosity. Let’s give the families affected by these rare conditions a reason to hope. Together, we can make a difference!
With heartfelt thanks,
Jeff
