Dear Facebook Friends,
This October, we are walking once again in the CSNK2A1 Foundation's Boundless Possibilities Run, Walk & Roll to raise funds for top-priority research projects that could change the future for Claire and others living with Okur-Chung Neurodevelopmental Syndrome (OCNDS).
My Claire lives with OCNDS, a rare genetic condition that impacts every aspect of her life -- how she communicates, thinks, learns, and her independence. Funds raised will support research that will help Claire and others living with OCNDS reach their potential and make life easier for them, their families and support network.
If you’re able, please please donate toward our $600 goal, share this post for awareness, and/or join team "Claire & Crew" and walk with us in October!
With gratitude,
Michelle
#BoundlessPossibilities #TheresNoPlaceLikeHope #OCNDS #RunWalkRoll #RareDiseaseResearch #Claireandcrew
