Events
Place
Description
JOIN US! Join our worldwide Okur-Chung Neurodevelopmental Syndrome (OCNDS) community on OCTOBER 12TH and OCTOBER 13TH for our IN UNITY Run, Walk & Roll for OCNDS! This event will help raise awareness and fund research for OCNDS, an ultra-rare genetic disease that affects individuals worldwide.
DO I NEED TO RUN TO PARTICIPATE? Absolutely not! This is called a run, walk, or roll. Our goal is for you to safely come together with others to bring awareness to OCNDS. Invite some friends and family to join you to come together IN UNITY for OCNDS. You can meet at the park, your street corner, the beach, or anywhere - get out of the house and move! You can RUN. You can WALK. You can ROLL whether on a bike, wheelchair, walker, scooter, roller skates, or rollerblades.
What is our theme for the year? Our foundation theme for the year is IN UNITY. The overarching goals of the foundation are to:
- Fund Research to Find Treatments/Cure
- Support Families
- Raise Awareness
- Advocate for Change
- Fundraise to support our efforts
We can’t do this alone, and we thank you for your commitment to come together IN UNITY to make the lives of those living with OCNDS brighter. Please send us photos of you with your family & friends IN UNITY to bring awareness to OCNDS.
WHY RUN, WALK or ROLL? WHY DONATE? OCNDS is a lifelong condition that significantly impacts the lives of those affected and their families. There is no treatment or cure - YET! We are living in a time where genetic conditions thought to be incurable are now being treated. Together we have the chance to fund life-changing research and increase global awareness.
Proceeds benefit the CSNK2A1 Foundation, whose mission is to raise awareness and funds to support research that leads to actionable treatments which will make a meaningful difference in the lives of those affected by OCNDS.
HOW TO SIGN UP:
Step 1. Register to run/walk/roll the virtual 5k or 1 mile, and invite your family and friends to join! Give your t-shirt size and mailing address.
Step 2. Invite your friends and family to join you and register.
Awards to be given for: *Loudest Family/Individual on Social Media, *Top Fundraiser, and *Most Creative Forward Together Photo on Facebook/Instagram
PRICING: $25 per adult registrant, $15 per child (2-18) registrant
Race Contact Info
If you have any questions about this race, click the button below.
Swag
Each registration fee includes (1) IN UNITY Event t-shirt and (1) digital race bib. For example, if you register (2) adults and (2) kids, you will receive (4) t-shirts and (4) digital race bibs. Due to shipping challenges, we can only guarantee T-shirts for those who register BEFORE SEPTEMBER 28, 2024.
Like this page and invite your friends on Facebook.
Race Participant Survey
Please complete the following survey to help us better understand your race experience.
