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JOIN US! Join our worldwide Okur-Chung Neurodevelopmental Syndrome (OCNDS) community on OCTOBER 16TH and OCTOBER 17TH for our MOVE INTO ACTION for OCNDS Run, Walk & Roll! This event will help raise awareness and fund research for OCNDS, an ultra-rare genetic disease that affects individuals worldwide.
DO I NEED TO RUN TO PARTICIPATE? Absolutely not! This is called a run, walk, or roll. Our goal is for you to safely come together with others to bring awareness to OCNDS. Invite some friends and family to join you to Move Into Action TOGETHER for OCNDS. You can meet at the park, your street corner, the beach, or anywhere - get out of the house and move! You can RUN. You can WALK. You can ROLL whether on a bike, wheelchair, walker, scooter, roller skates, or rollerblades.
WHY RUN, WALK or ROLL? WHY DONATE? OCNDS is a lifelong condition that significantly impacts the lives of those affected and their families. There is no treatment or cure - YET! We are living in a time where genetic conditions thought to be incurable are now being treated. Together we have the chance to fund life-changing research and increase global awareness.
Proceeds benefit the CSNK2A1 Foundation whose mission is to raise awareness and funds to support research that leads to actionable treatments which will make a meaningful difference in the lives of those affected by OCNDS.
STEPS TO PARTICIPATE:
Step 1. Register to run/walk/roll the virtual 5k or 1 mile, and invite your family and friends to join! Give your t-shirt size and mailing address.
Step 2. Go Solo or Join a Team or Create a Team and invite your friends to join.
Awards to be given for: *Loudest Team on Social Media, *Top Fundraising Team, and *Team with the Most Teammates
PRICING: $20 per adult registrant, $15 per child (2-18) registrant (If you form a team & the team raises more than $300, you will be refunded registration fees up to $50)
IF YOUR TEAM RAISES $300, YOU WILL RECEIVE A REFUND OF YOUR REGISTRATION FEES OF UP TO $50.
If you have any questions about this race, click the button below.
Each registration fee includes (1) Move Into Action Event T-Shirt and (1) digital race bib. For example, if you register (2) adults and (2) kids, you will receive (4) t-shirts and (4) digital race bibs. Due to shipping challenges, we can only guarantee T-shirts for those who register BEFORE October 01, 2021.
If you would like to purchase additional Move Into Action event items (e.g., t-shirts, water bottles, vinyl stickers) visit our merchandise shop at https://www.csnk2a1foundation.org/shop/
Like this page and invite your friends on Facebook.
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