PLEASE NOTE, DUE TO SCHEDULING CONFLICT, GABBY'S 5K WILL BE SATURDAY MAY 10TH AT 10:00
RAIN DATE MAY 11TH
LOCATION, WENTWORTH AVENUE IN CRANSTON-ROGER WILLIAMS PARK
This is our third annual Team Gabby 5K, and the past two years have brought our family immense joy and encouragement. This year, we aim to raise $4,000. Gabby's CACNA1A Foundation has established a funding initiative, and money from events like the 5K has contributed to awarding a new grant in 2025. This grant will support the development of a potential gene therapy, such as an antisense oligonucleotide (ASO), for Gabby's specific CACNA1A mutation. Funds raised from 5Ks across the country will continue to drive this critical research forward.
Over the past two years, we have connected with many children worldwide who share Gabby's exact mutation-many of them infants, toddlers and young children. Our dream is for those who come after Gabby to have access to a curative gene therapy made possible through research funded by the CACNA1A Foundation. Gabby's variant has been shown to be progressive, and the impact of daily seizures on her development has meant slowly losing our little girl. Our greatest hope is for a future where infants diagnosed early with this genetic disease can receive treatment to prevent its devastating progression.
Please join me in supporting the CACNA1A Foundation by participating in our 5th Annual 5K and donating to my fundraiser. All funds will directly support the Foundation's mission to raise global awareness and funds for much-needed research for CACNA1A-related disorders. Current treatment options are limited, and there is no cure.
Together we have the chance to accelerate life-changing research and improve the lives of those affected by CACNA1A!
