May 18-19, 2024

 

The CACNA1A Foundation and families around the globe will be hitting the pavement

from May 18-19, 2024 for the 4th Annual Virtual CACNA1A Run, Walk and Roll 5K!

 

This event can be accomplished anywhere, so run, walk, roll, or treadmill at your

own pace. All are encouraged to gather with friends, family and supporters at your

local park, neighborhood, school or other venue in honor of this event!

 

 

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Register/Create a Team

 

Take part in the 4th Annual 5K for CACNA1A as a walker, runner or roller! Participants can register individually or create a team that others can join to support you or your loved one. This virtual event can take place anywhere in the world so feel free to gather your friends and family to celebrate this event and raise awareness for CACNA1A together!

REGISTER

Join/Find a Team

 

Are you looking for an established team participating in the event? Join them to show your support by registering as a member of their team and becoming a fundraiser to help reach our goal! All funds will directly support much-needed research for CACNA1A-related disorders!

JOIN A TEAM

WIN A RIFTON ADAPTIVE TRICYCLE

Rifton believes everyone deserves the chance to ride a bike and understands the many therapeutic benefits. Thanks to the generous support from Rifton, 5K participants can enter to win a free adaptive tricycle. A winner will be chosen by random drawing on May 21, 2024 (exclusions apply).

*Previous recipients/winners are not eligible*

 

 

Prizes!

 

The CACNA1A Foundation challenges all of our participants to some friendly competition for

this great cause! The winners of the following categories will receive a $100 gift card from a

gracious 5K sponsor.

 

                                                 

5K Signs & Banners

 

 

Will you or your team be gathering with others to participate in the 2024 CACNA1A 5K? Make it even more fun and spread more awareness by downloading and printing the CACNA1A Foundation's 5K yard signs and banner to display at your event location, home, neighborhood and even around town! 

5K Signs & Banners

Event Planning Toolkit

 

 

Access the CACNA1A 5K Event Toolkit for guidance and tips on planning your own local race. By participating with others, you help raise awareness for CACNA1A-related disorders, engage and grow your community and help us reach our fundraising goal, which will aide our mission to accelerate life-changing research!

Download Toolkit

Find an In-Person Event Near You

 

Email events@cacna1a.org to add your in-person event to the map!

Find an Event

 

The CACNA1A gene is vital in the development of calcium channels. These voltage-gated

channels mediate the entry of calcium ions into excitable cells and are involved in a variety

of calcium-dependent processes. As a result, individuals with CACNA1A gene variants have

altered channel function resulting in a myriad of symptoms which varies from patient to patient.

This is why we want to ‘Change the Channel’ in order to restore their channel function.

 

 

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What is CACNA1A?

CACNA1A is a large gene that plays a vital role in the communication between neurons in the brain. Genetic variants can have devastating effects on individuals affected and their families. Many symptoms begin in childhood and worsen over time, including epilepsy, ataxia, hemiplegic migraines, eye movement disorders, cerebellar atrophy, intellectual disability and more. 

Why the Urgency?

CACNA1A-related disorders are lifelong conditions that significantly impact the lives of those affected and their families. Countless hours are spent in hospitals, therapies and physician offices attempting to alleviate symptoms faced on a daily basis. There are very limited treatment options and no cure. It is our mission to accelerate research and improve the lives of everyone affected by CACNA1A to give them a better tomorrow.