On May 3-4, 2025, the CACNA1A Foundation and families around the globe will be participating in the 5th Annual Virtual CACNA1A 5K Run, Walk and Roll!

Participate from Anywhere!
Run, walk, roll, or treadmill – the choice is yours! Enjoy the flexibility to complete this event at your own pace and in the way that suits you best.

Connect with Your Community!
We encourage everyone to gather with friends, family, and supporters at their favorite local spot: a park, neighborhood, school, or any place that feels special to you. Let's celebrate this event together!

Register Donate Sponsor

Celebrating 5 Years Serving Our Families! The CACNA1A Foundation was established 5 years ago by parents of children affected by the debilitating impacts of CACNA1A-related disorders. The disorders cause a range of symptoms, including developmental delays, intellectual disability, behavioral issues, seizures, epilepsy, movement disorders, autism, hemiplegic migraines (stroke-like events), and speech difficulties, all of which significantly reduce quality of life. As the only patient advocacy group dedicated to finding specific treatments for this community, our work focuses on 3 core pillars: supporting families, raising awareness, and advancing research toward a cure.

Your generous participation in our 5th Annual 5K will directly contribute to this year's goal of raising $100,000 to identify and test medications that can alleviate symptoms and enhance the quality of life for our community. Each dollar raised brings those impacted one step closer to a brighter future.

Register/Create a Team

 

It’s time to gather your friends and family to celebrate and raise awareness for CACNA1A! Register as an individual or create a team to support the CACNA1A Foundation.

REGISTER

Join/Find a Team

 

Support existing teams by joining as a member and helping them fundraise to reach their goal. Every dollar raised directly funds vital research for CACNA1A-related disorders.

JOIN A TEAM

Find an In-Person Event Near You

(Locations will continue to be updated as teams are built!)

 

Email events@cacna1a.org to add your in-person event to the map!

Prizes

Embrace the Challenge. Show Your Support. Win a Prize!

All CACNA1A 5K Run, Walk & Roll participants are invited to join in a friendly competition. Winners in the following categories will receive a $100 gift card:

Philanthropy Award: the team that raises the most money

Spirit Award: the team with the most participants

Miles of Smiles: Email a photo of your smiling Champion during the 5K, along with his/her name, to events@cacna1a.org and he/she will be entered in a drawing for a prize.

Win a Rifton Adaptive Tricycle

Rifton believes everyone deserves the chance to ride a bike and understands the many therapeutic benefits. Thanks to the generous support from Rifton, 5K participants can enter to win a free adaptive tricycle. A winner will be chosen by random drawing on May 6, 2025 (exclusions apply*).

* Previous recipients/winners are not eligible

5K Signs & Banners

 

 

Will you or your team be gathering with others to participate in the CACNA1A 5K? Make it even more fun and spread more awareness by downloading and printing the CACNA1A Foundation's 5K yard signs and banner to display at your event location, home, neighborhood and even around town! 

5K Signs & Banners

Event Planning Toolkit

 

 

Access the CACNA1A 5K Event Toolkit for guidance and tips on planning your own local race. By participating with others, you help raise awareness for CACNA1A-related disorders, engage and grow your community and help us reach our fundraising goal, which will aide our mission to accelerate life-changing research!

Download Toolkit