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The 11th Annual Passion for Life event is a 5K Run/Walk and 5 Mile run event benefiting research at U of M C.S. Mott Children's Hospitals and our Inspirational Family of the year. Each year the Passion for Life Organization chooses an Inspirational Family and raises research funds for diagnosis of that particular family.
Our eleventh Inspirational Family is the Horn family. Matthew is a one and a half year old little boy from West Bloomfield, MI. Matthew does not have one full diagnoses, but the doctors are saying he has Airway Malacia, which is a broad term to encompass many diagnoses, all resulting in the collapsing of the airway: a Congenital Disorder of the Respiratory System and Sleep Apnea.
In 2017, the doctor ordered a Spinal MRI, which showed that Matthew had developed bronchiectasis. Bronchiectasis is a progressive lung disease that causes permanent damage to the lower bronchi. Matthew’s bronchiectasis is believed to be caused by chronic aspiration of an unknown etiology. Bronchiectasis causes destruction to the bronchi walls. As the disease progresses, it causes the bronchi to dilate and weaken, providing a perfect habitat for bacteria to grow. Matthew has since, had multiple lower airway bacterial infections. The progression of this disease is catastrophic to the well being of his lungs. Unfortunately, unless the cause of the disease is controlled, the progression of the disease will not stop, and the long term well being of his lungs will continue to deteriorate. Matthew see’s doctors out of the University of Michigan C.S. Mott Children’s Hospital and Boston’s Children’s Hospital on a regular basis. Matthew has a smile that is not only contagious but it will light up any room that you are in. He is a happy and fun loving little boy who enjoys smiling, laughing and playing hide-and-seek with his brothers. He especially loves music and to dance.
For more information visit: http://passion-for-life.org/inspirational-families/2018-horn-family/
12 & under pricing is reduced upon registration
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