DO I NEED TO RUN TO PARTICIPATE?

Absolutely Not!

Move your way.

Whether you walk your neighborhood, hike a favorite trail, ride your bike, play pickleball, golf with friends, dance in your living room, swim, or create your own challenge, every step helps fund the next breakthrough in OCNDS research.

Invite your family, friends, neighbors, or coworkers to join you—or simply cheer you on by supporting your page.

Participate anytime during October, then celebrate with our global OCNDS community during Community Celebration Weekend on October 10–11.

HOW TO SIGN UP:

Sign up by September 18 to help ensure your T-shirt arrives before Community Celebration Weekend (October 10–11).

STEP 1: Click Sign Up, choose your T-shirt size, and enter your mailing address. Prefer not to receive a T-shirt? Select "No T-shirt" during sign up, and the value of your shirt will support OCNDS research.

STEP 2: Move your way! Run, walk, roll, bike, hike, dance, swim, golf or create your own challenge anytime during October.

STEP 3: Share your personal fundraising page with family and friends and invite them to help fund the next breakthrough in OCNDS research.

STEP 4: Share your photos and videos throughout October, especially during Community Celebration Weekend (October 10–11).

Awards: Top Fundraiser • Most Inspiring Photo/Video • Social Media Champion

WHEN YOU SIGN UP, YOU'LL RECEIVE:

✔ Official 2026 Bold Breakthroughs commemorative T-shirt*

✔ Your own personal fundraising page

✔ Opportunity to earn fun awards

✔ Invitation to Community Celebration Weekend

✔ The opportunity to help fund the next breakthrough in OCNDS research

*Sign up by September 18 to help ensure your shirt arrives before Community Celebration Weekend. If you prefer not to receive a shirt, simply select "No T-Shirt" during sign up, and the value of your shirt will support OCNDS research.

WHY MOVE? WHY DONATE?

OCNDS is an ultra-rare genetic condition that affects communication, learning, movement, behavior, sleep, and development. There are currently no approved treatments or cures.

By signing up, donating, and raising awareness, you're helping fund research that brings us closer to better treatments—and one day, a cure.
Last year, together, our community helped fund a $50,000 pilot research project. This year, we set out to do it again and we reached that goal. Now we're stretching to $60,000. Every dollar beyond $50,000 helps us build on this investment by funding the additional research, data, tools, and next steps that can move promising discoveries forward.

Every person who signs up. Every donation. Every shared story. Helps move OCNDS research forward.