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Join us in Westminster, CO on Sunday August 25, 2019 as we support the fundraising efforts toward finding better treatments and a cure for RDH12 - a retinal degenerative disease.
This is a family friendly event and all encouraged to attend! Walkers, joggers, dogs and serious runners: all are welcome!
If you don't think you can do the 3.1 miles just come play, listen to music and browse the silent auction items. The bidding opens at 8:30 am and will end at 10:30am and winners will be announced.
If you can't make it the day of the event, please consider clicking on the donate button and donating to this cause that is near and dear to our hearts.
Our 8 year old son, Logan, and our 6 year old daughter, Zoe, were diagnosed with a rare genetic mutation that results in a progressive loss of vision called Lebers Congenital Amaurosis (LCA). Logan and Zoe's specific LCA was identified by the Carver lab at the University of Iowa as being caused from a mutation along the RDH12 gene. As of now, there is no known cure for LCA caused by the RDH12 gene and those with RDH12 deficiency eventually go blind, typically in their late teens to early twenties
There is currently nothing that can be done for someone that has this diagnosis, but there is hope for gene therapy. This past year the FDA approved the first ever "medication/ gene therapy" for the treatment of one of the 27 known Leber's Congenital Amaurosis gene defects, RPE65. This has given us immense hope for the future for a cure for Logan and Zoe's gene. The same scientist that did the research for the RPE65 is the one heading up our gene research. This past summer we went to the University of Pennsylvania to get enrolled in their system with the hopes of a clinical trial in the next few years. It is critical at this time to raise as much as we can to fund this advancement. Hopefully 2019 will be our year!!!!
Why support the RDH12 Fund for sight?
Since it’s founding, the RDH12 Fund for Sight has enjoyed significant success and growth. Our group now includes 20 children from 17 families and to date, has raised 1 million dollars for RDH12 research to help all of the children with RDH12 LCA be cured of blindness.
With funds raised, the RDH12 Fund for Sight has awarded two grants to academic researchers, Jean Bennett at the University of Pennsylvania and Debra Thompson of the University of Michigan. With these funds, they have successfully developed a gene therapy for RDH12 LCA. This work could potentially be available for use by our children in 1 short year. But in order to realize this goal, the foundation must find a way to continue to provide Dr. Thompson with the resources necessary to push this cure across the finish line.
The RDH12 Fund for sight is a registered 501(3)(c) charitable foundation so all donations to the fund are tax deductible. The Fund does not pay administration fees nor maintain any employees which means all money raised goes directly to a cure. It is entirely supported by the parents of children with this disease who volunteer their time and love their children.
For more info on RDH12 see the website at: www.RDH12sight.org
If you have any questions about this race, click the button below.Questions?
This event will be electronically timed and results posted in real time at the event. CLICK HERE on race day for results! Please make sure to wear your bib number on the FRONT, OUTSIDE of your clothing as that is number by which you are timed! It needs to be visible by the finish line timer. Thank you!
Yes - this is a family friendly event! Well behaved, leashed dogs are welcome. You may participate with a stroller. You may wear headphones during this event, but we ask that you take them out during announcements or any time you see a course official giving direction at the start line or on the course.
The Course is relatively flat and will be on paved walkway and dirt path along the Big Dry Creek Trail.
During and after the race we will be holding a silent auction. We will have some amazing items up for bid. The items will be updated on this site as the date gets closer so you can read in advance what will be available.
Please come and bid as 100% of the proceeds go to the fund.
Stay with us after the race for some great music. The Polkanauts will be performing again with us this year and hopefully the school of rock bands will also play. We promise that you will find some energy to get up and dance even though you just ran/walked 3.1 miles. There will also be kid freindly activities including face painting and a booth printing your name in Braille and playing with some vision altering glasses. There will be a ton of snacks to enjoy while you browse the silent auction tables.
If you can't run, come play! Tour the silent auction items while the others run/walk and get your face painted. We are in the process of adding a fun "challenge" as well hat may involve a blindfold :)
We will have an amazing photographer taking pictures of the race that will be downloadable for everyone free. A special thanks to this years photographer
The Blink of a Lens Photography by Brittany Harvey
There will be free parking in the back right lots near the Westin Westminster. The road past the race is closed but there is still two big parking lots to use. If those fill up you could valet park at the Westin or park in the Westminster Promenade across the street.
Bib and shirt pickup will occur the Friday before the race at the Wonderland Brewery between 5:30 and 7:30 pm. If the weather cooperates we will in the outdoor area behind the brewhouse. Walk in the brewery and come out back. Pick up your shirt and bib and maybe enjoy some carb loading beers!
If you can't make it to early pick up, bib, shirt and same day registration will start at 8:00 am the day of the race at the starting area.
click the heading to connect to the link
Click on the header to see the video
Here are links to the amazing story that altitude sports did on Logan and Zoe this past year. We are so thankful to the Avalanche, Kronke Sports and altitude sports!!!