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*LARGEST* team created will have a fun yard sign posted for everyone to see on race day!
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On December 22nd, 2021, Oakley, a previously healthy 2 year old, was diagnosed with a rare, life-threatening blood disorder called Severe Aplastic Anemia, resulting in bone marrow failure. In short, her bone marrow stopped producing enough blood cells, leaving her with dangerously low red/white blood cells and platelets. Oakley had been fighting for her life while receiving roughly 70 blood/platelet transfusions, and immunotherapy that unfortunately didn’t work. Her only chance at survival was a bone marrow transplant, requiring a conditioning regimen of immunosuppressants, chemotherapy, and radiation.
With relief, her transplant team had found Oakley a close matched bone marrow donor who had registered on Be The Match. This person selflessly signed up, and donated her healthy stem cells with the hopes of giving a stranger a second chance at life - and that person happened to be Oakley.
After a vigorous 7 week stay in the hospital receiving her life-saving transplant, Oakley’s family were given the news that her transplant was successful.
Oakley’s experience has been anything but ordinary - spending nearly 4 months total inpatient. She has had to endure jaundice/liver toxicity, an invasive infection resulting in a PICU stay with surgery and intubation, multiple flare-ups of GVHD - a condition that occurs when donor bone marrow attack the recipient, a blood infection, mucocitis, and more. Though this journey presented many days/nights of vomiting, pain, weakness, aches, lethargy, and tears, Oakley’s strength and courage showed that she is a true super hero. Despite her rollercoaster recovery, she is finally able to start living life as a kid again.
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