The Sturge-Weber Foundation (The SWF) global mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port-Wine Birthmark conditions through tenacious collaboration with clinical partners and pioneers, education, advocacy, research and friendly support.

For the SWF 2020-2021 Fiscal Year, the Foundation is focusing on aspects of CARE | Connect. Accept. Respect. Engage. 

We intend to define better than ever how SWF will continue its 32 plus year legacy of impact in the lives of patients and family, and continue ground-breaking research that will lead to better treatments, quality of life and ultimately, a cure.

We CONNECT and provide support for patients and families living with SWS .

We ACCEPT the challenge to forge a better quality of life for those with SWS.

We RESPECT those who lead us forward through critical research of SWS.

We ENGAGE society through education to provide a better understanding of SWS.