Kisses For EB is a non-profit in Lancaster County, PA to bring awareness about epidermolysis bullosa and to bring assistance to those who have EB. My grandson was born missing 60% of skin and muscle on his legs. There is no cure, and it feels like a 3rd degree burn all over his body at all times. There is only pain management and wound care.
EB individuals are missing the protein / collagen within their skin layers to keep their layers together. Depending on how much protein / collagen is missing is dependent on how severe their EB is.
In 2022 we were able to assist 10 families to go to Denver Colorado to participate in the DEBRA Conference where the families could meet other families and to attend seminars to gain knowledge on how to manage their care more efficiently.
Join us for an exciting time and learn more about Kisses For EB.
