Summits For Syngap

Join us in our virtual hike to benefit Bridge the Gap! Hike, Walk, or Run any trail in the month of September! As many of you know Raylan has a rare genetic disability called Syngap 1. Since 2014, Raylan has faced and conquered many mountains. On September 11th, 2020 he is climbing his biggest mountain yet. To help him overcome his rare form of epilepsy he will undergo a specialized intensive surgery known as a Corpus Callosotomy. We are asking you to join us in a virtual hiking fundraiser to benefit Bridge the Gap and help more kids like our superhero Raylan!

SYNGAP1 is a rare, genetic disorder. Predominantly affecting children, SYNGAP1 mutations lead
to developmental delay, intellectual disability, epilepsy, and autism. The only way to confirm a
diagnosis of SYNGAP1 is through genetic testing. The average age of diagnosis is 5 years and it is
found in equally in both boys and girls. SYNGAP1 has been diagnosed world wide.
SYNGAP1 symptoms can range from mild to very severe and can include:
 Developmental Delay - approximately 97%
 Autism - approximately - 60% are affected
 Epilepsy - approximately - 85% are affected
 Sensory Processing Disorders - common
 Gait Abnormalities - common
 Communication Challenges - common