BrainStorm Summit

7:15 a.m. Registration & Breakfast
7:45 p.m. - 3:00 p.m. Program & Luncheon
3:00 p.m. - 5:00 p.m. White House Childhood Cancer Briefing Watch Party
Ends at 5:00 pm EDT.

​National Press Club - 529 14th St NW, Washington, DC 20045

$75/person (includes breakfast and lunch)

​Premium Sponsorships provided by: ChadTough Defeat DIPG Foundation, Pediatric Brain Tumor Foundation, and Tough2gether Against DIPG

 Additional Sponsorships provided by: Arms Wide Open Childhood Cancer Foundation, Bionaut Labs, BrainTumor Network, Childrens Brain Tumor Foundation, Children’s Brain Tumor Network, CureSearch, Focused Ultrasound Foundation, Gift From A Child, Luke’s Posse, MaxLove Project, Morgan Adams Foundation, Oncoheroes Biosciences, Sonalasense, Storm the Heavens, Take Over Tumors, The H Life, Dimples Jewelry, MaxLove Project and Dragon Master Foundation.

Event Summary: BrainStorm Summit is a NEW event bringing the pediatric brain tumor community together to share the latest information on: Alternative Therapies, Grief, Preclinical Research, Immunotherapy Options, the Value of Sharing Patient Data and Recent Advances from Shared Data, Emotional Support Strategies for Parents, Fighters, Siblings and Survivors, a Review of the new My DIPG Navigator and the DIPG DMG National Brain Tumor Board, and Advanced Therapies.

Confirmed Speakers:  Dr. Peter Adamson, Dr. Roger Packer, Dr. Adam Resnick, Reed Jobs, Dr. Nicholas Vitanza, Dr. Lindsey Kilburn, Dr. Jessica Foster and additional speakers to be named later.

7:30 a.m. Registration and Coffee Service
8:30 a.m. Breakfast
9:00 a.m. - 11:00 a.m. Program
11:00 a.m. - 11:30 a.m. Community Connection

JW Marriott Washington DC - 1331 Pennsylvania Avenue, NW, Washington, DC

$25/person (includes breakfast - age 3 and up).

Hosted by Tough2gether Against DIPG

Presented in partnership with: ChadTough Defeat DIPG Foundation, Dimples, Luke's Posse, Storm the Heavens, and Glimmer of Hope Foundation.

Also sponsored by: Bionaut Labs, Cure Starts Now, Mithil Prasad Foundation. Noah Halek Strong, Sonalasense, AMP Properties, Kenzie Scoggins Family, Live Gray's Way, Kaylan Strong Fight Like a Warrior

This breakfast promises to be a renewal of the shot in the arm the DIPG community experienced last fall. Now, in its second year, the breakfast is the pinnacle of togetherness for all DIPG families, researchers, physicians, cancer advocates and policy makers. We will intentionally provide time before and after the breakfast program to get to know others as we mingle amongst poster displays of our children and foundations who light our path. The program once again will highlight trials which are showing promise, new advances on the way, and celebrate the initiatives accomplished together in 2021-2022. Just as important, we'll hear a fighter's perspective, legislative update, and share a roadmap of more opportunities to work towards together in 2023. Anyone is invited to join us and learn more about DIPG/DMG.

Questions: Lisa Ward at tough2gether@gmail.com

7:30 a.m. Registration and Coffee Service
8:30 a.m. Breakfast and Program begins 
11:30 a.m. Program Ends

JW Marriott Washington DC - 1331 Pennsylvania Avenue, NW, Washington, DC Cost: $25/person (includes breakfast - age 3 and up) We encourage children under 12 to take advantage of the children’s programing on Saturday morning.


Premium Sponsorships provided by: ChadTough Defeat DIPG Foundation, Pediatric Brain Tumor Foundation, and Tough2gether Against DIPG


Additional Sponsorships provided by: Arms Wide Open Childhood Cancer Foundation, Bionaut Labs, BrainTumor Network, Childrens Brain Tumor Foundation, Children’s Brain Tumor Network, CureSearch, Focused Ultrasound Foundation, Gift From A Child, Luke’s Posse, MaxLove Project, Morgan Adams Foundation, Oncoheroes Biosciences, Sonalasense, Storm the Heavens, Take Over Tumors, The H Life, Dimples Jewelry, MaxLove Project and Dragon Master Foundation.


This breakfast focuses on the real challenges faced by survivors of pediatric brain tumors. Special attention is given to education, employment, advocacy, complications from treatment, recurrence, sexuality, health benefits & employment, and overcoming the lasting emotional impact of a cancer diagnosis. Spend the morning with other cancer survivors, their families, providers, researchers and advocates as we delve into what happens now? Surviving after the immediate battle with pediatric brain cancer. Anyone is invited to join us and learn more about dealing with the many issues survivors face.

Questions: Lisa Ward at tough2gether@gmail.com