DDX3X Syndrome Fun Run/Walk 2023

Join us for the 3rd Annual DDX3X Community Fun Run/Walk! The run is within the Queensbury Community. The run/walk is great for kids of all ages, adults, and is stroller friendly.  All proceeds from this event will support research, connect families and rase awareness for the rare disease. All registered runners will receive a swag bag! T-Shirts are available in adult and youth sizes. Please pre-order to guarantee a shirt on race day! Adult Sizes: $20 and Youth sizes: $18

Request a shirt at: scarlettsrun@gmail.com OR call/text (480) 294-4773

The DDX3X syndrome was discovered in the United States in 2014 and primarily affects girls due to its location on the X-chromosome, though there are some boys it has affected as well. Although it has currently only been identified in about 1000 individuals world-wide, doctors believe it is the cause of 1 to 3 percent of all intellectual disabilities in females. 

DDX3X Syndrome is often misdiagnosed as autism spectrum disorder, cerebral palsy, Rett Syndrome, Dandy-Walker Syndrome, or a generic developmentally delayed label. It is linked to intellectual disabilities, seizures, autism, low muscle tone, abnormalities of the brain, and slower physical developments. It presents in a broad spectrum—some individuals develop the ability to speak in full sentences, while others are nonverbal. Some individuals run, jump, and even ski, while others are unable to walk.